Clik here to view.
NHF 70th: Saluting HTC Nurses
In recognition of National Nurses Week, Mary Lesh, RN, MS, CPNP speaks of the care HTC nurses provide to people with bleeding disorders.Read more about NHF 70th: Saluting HTC Nurses
View ArticleClik here to view.
Medscape Launches New Hemophilia Gene Therapy Education
Healthcare professionals who manage patients with hemophilia can enhance their knowledge of gene therapy for hemophilia.Read more about Medscape Launches New Hemophilia Gene Therapy Education
View ArticleClik here to view.
CMS Denies Kansas' Attempt to Limit Medicaid
CMS rejects time limit proposal in Kansas; allows work requirements in several other states.Read more about CMS Denies Kansas' Attempt to Limit Medicaid
View ArticleClik here to view.
Honoring Joan C. Gill, MD
Dedicated clinician and distinguished researcher passed away on May 9, 2018.Read more about Honoring Joan C. Gill, MD
View ArticleResearch Highlights the Effectiveness of pdFX in Females with Factor X
Authors of an article published recently in the Journal of Thrombosis and Haemostasis (JTH) looked at the treatment of individuals with factor X deficiency (FX) with a human plasma-derived concentrate...
View ArticleClik here to view.
NHF 70th: Unite for Bleeding Disorders
Our Unite for Bleeding Disorders walks bring the community together in a way that honors the past while looking forward to the future.Read more about NHF 70th: Unite for Bleeding Disorders
View ArticleClik here to view.
Honoring the Past, Embracing the Future
NHF's Red Tie Soiree paid tribute to longtime advocates for the bleeding disorders community while looking forward to the future of research and treatment.Read more about Honoring the Past, Embracing...
View ArticleClik here to view.
Prophylaxis Study Results for Boys with Severe Hemophilia A
Researchers investigated an approach to prophylactic therapy in which patients began by receiving weekly infusions of standard half-life recombinant factor VIII and ultimately transition to “tailored...
View ArticleClik here to view.
Study Shows VWD Testing Rates Remain Low
Most postpubertal girls and adolescents who experience heavy menstrual bleeding are not screened for von Willebrand disease (VWD), despite years of recommendations from the American College of...
View ArticleClik here to view.
coreHEM Publishes Core Outcome Set for Hemophilia Clinical Trials
coreHEM has produced the first set of guidelines recommending a specific, minimum set of outcomes to include in hemophilia gene therapy clinical trials.Read more about coreHEM Publishes Core Outcome...
View ArticleClik here to view.
Hemlibra Safety Update
Genentech informed NHF of a postmarketing fatality that has occurred in an elderly patient who received treatment with emicizumab- kxwh (Hemlibra) for acquired hemophilia A.Read more about Hemlibra...
View ArticleClik here to view.
Genentech Announces Positive HEMLIBRA Trial Results
In the Phase III HAVEN 3 study, patients who received HEMLIBRA prophylaxis every week or every two weeks experienced a 96% and 97% reduction in treated bleeds.Read more about Genentech Announces...
View ArticleClik here to view.
Spark Sees Continued Progress in Hemophilia B Gene Therapy
The overall annualized bleeding rate for all 15 participants was reduced by 98% to an annual rate of 0.2 bleeds per patient.Read more about Spark Sees Continued Progress in Hemophilia B Gene Therapy
View ArticleClik here to view.
NHF’s Dawn Rotellini Elected to WFH Board of Directors
"It has become my passion to make a difference for people throughout the world. We all need access to treatment and care and education.”Read more about NHF’s Dawn Rotellini Elected to WFH Board of...
View ArticleClik here to view.
New Study on Aging, VWF Levels and Bleeding Risk
Investigators looked to establish whether VWF levels increase as patients with VWD age, and if so, whether this can be associated with lower risk for bleeding.Read more about New Study on Aging, VWF...
View ArticleClik here to view.
Who are the Stars of the Bleeding Disorders Community?
Our dedicated providers and inspiring volunteers and advocates can be recognized with an Award of Excellence!Read more about Who are the Stars of the Bleeding Disorders Community?
View ArticleClik here to view.
uniQure Reports Successful Delivery of FIX Gene Therapy Despite Antibodies
The data showed its hemophilia B investigational gene therapy candidate AMT-060 could be successfully delivered to patients with certain pre-existing antibodies.Read more about uniQure Reports...
View ArticleClik here to view.
FDA Approves New Vial Size for Idelvion®
The new vial size is 3500 IU (international unit).Read more about FDA Approves New Vial Size for Idelvion®
View ArticleClik here to view.
HEMLIBRA® Granted Priority Review by FDA
This priority review is specifically for adults and children with hemophilia A without FVIII inhibitors.Read more about HEMLIBRA® Granted Priority Review by FDA
View ArticleClik here to view.
Genentech Announces the Launch of New Safety Website
The new web portal for patients and caregivers is intended to provide timely and accurate information on targeted serious adverse events of interest for HEMLIBRA.Read more about Genentech Announces the...
View Article