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Takeda announced a pharmacy-level recall of two lots of VONVENDI
HFA and NHF recognize that recalls can be unsettling for many in the bleeding disorders community. We are in communications with Takeda to obtain additional detailed and timely information.Read more...
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Joint Statement on Recall of VONVENDI Lots
On February 27th, NHF and HFA submitted a letter to Takeda focusing on preliminary questions regarding the recall.Read more about Joint Statement on Recall of VONVENDI Lots
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Community Statement from Genentech on Hemlibra supply amid 2019-nCoV
On February 28th, Genentech released a statement relating to the supply of Hemlibra as it relates to 2019-nCoV (novel coronavirus).Read more about Community Statement from Genentech on Hemlibra supply...
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MASAC Letter to the Community Regarding the Coronavirus Disease 2019
We will provide updated guidance if new information has implication for the bleeding disorders community.Read more about MASAC Letter to the Community Regarding the Coronavirus Disease 2019
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Bleeding Disorders Community Advocates in Washington, DC
More than 400 people affected by bleeding disorders asked their legislators to take action on the Hemophilia SNF Access ActRead more about Bleeding Disorders Community Advocates in Washington, DC
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Medexus Acquires XINITY® from Aptevo
XINITY® is currently indicated for the control and prevention of bleeding episodes and for perioperative management in adults and children, 12 years of age or older, with hemophilia B.Read more about...
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NHF Letter to the Community on COVID-19
The National Hemophilia Foundation will continue to monitor the rapidly changing situation regarding COVID-19 and provide regular updates to our community.Read more about NHF Letter to the Community on...
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Takeda Responds to HFA-NHF Letter on VONVENDI Recall
Takeda responded to the HFA-NHF letter late yesterday regarding the recall of two lots of VONVENDI von Willebrand factor.Read more about Takeda Responds to HFA-NHF Letter on VONVENDI Recall
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NHF Office Response to COVID-19
Due to the recommendations of local government, NHF's New York City staff will be working remotely until further notice. We will continue to work to serve the bleeding disorders community during this...
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2020 NYC Half Marathon Cancelled
The 2020 United Airlines Half Marathon has been cancelled due to concerns over transmission of COVID-19.Read more about 2020 NYC Half Marathon Cancelled
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Statement from Len Valentino on COVID-19
A statement from Dr. Valentino addressing the concerns of the community regarding the rapidly evolving COVID-19 situation.Read more about Statement from Len Valentino on COVID-19
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Updates on Product Availability During COVID-19 Outbreak
NHF will update this page as more statements about product supply become available.Read more about Updates on Product Availability During COVID-19 Outbreak
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Three Concizumab Trials Halted by Novo Nordisk
The halted trials were investigating concizumab prophylaxis treatment in hemophilia A and B patients regardless of inhibitor status.Read more about Three Concizumab Trials Halted by Novo Nordisk
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Coverage Concerns and Unanswered Questions: We Get It
Do you have questions regarding insurance coverage in light of the COVID-19 pandemic? We're here to help.Read more about Coverage Concerns and Unanswered Questions: We Get It
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Health and Wellness Update from Dr. Valentino
Information and techniques you and your family can use to stay healthy during the COVID-19 pandemic.Read more about Health and Wellness Update from Dr. Valentino
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Dr. Valentino's COVID-19 Town Hall Webinar
On March 20th, NHF’s President and CEO answered your questions about how COVID-19 affects our community.Read more about Dr. Valentino's COVID-19 Town Hall Webinar
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MASAC Issues Four New Documents
MASAC's latest set of recommendations cover the use and management of emicizumab, the latest products licensed to treat bleeding disorders, integrating the CDC's opioid prescribing guidelines into...
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Town Hall Webinar - Insurance: Coping During COVID-19
On March 27th, experts from NHF answered your questions regarding changes in insurance in our townhall webinar: Insurance: Coping During COVID-19.Read more about Town Hall Webinar - Insurance: Coping...
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Supplemental MASAC Statement Regarding Home Delivery and Refill Under State...
Having an adequate supply of treatment products at home is critical to achieve safe patient care and continuity of treatment.Read more about Supplemental MASAC Statement Regarding Home Delivery and...
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HTC Visits and COVID-19
What you need to know about access to HTCsRead more about HTC Visits and COVID-19
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