New Medscape Activity to Help Institutions Offer Gene Therapy
NHF is pleased to announce that its collaboration with Medscape continues with a new accredited educational activity designed to help healthcare providers fully incorporate gene therapy into the...
View ArticleStart the Conversation: Gene Therapy – An Oasis or Mirage?
By Ray Stanhope[NOTE: As part of NHF’s Bleeding Disorders Awareness Campaign, NHF CEO Dr. Len Valentino has invited community members and medical professionals to “start the conversation” on gene...
View ArticleStart the Conversation: Dr. Amy Dunn on Gene Therapy
[NOTE: As part of NHF’s Bleeding Disorders Awareness Campaign, NHF CEO Dr. Len Valentino has invited community members and medical professionals to “start the conversation” on gene therapy. The...
View ArticleBioMarin Announces FDA’s Extended Review of Investigational Hemophilia Gene...
On March 6th BioMarin announced that it received a notice from the U.S. Food and Drug Administration (FDA) indicating that the agency has extended their review of the company’s Biologics License...
View ArticleSummit Emphasizes Pharmacovigilance in the Inherited Bleeding Disorders...
Biomedical and pharmaceutical companies who intend to bring a product to market must demonstrate safety and efficacy of those products via closely monitored preclinical and clinical studies.
View ArticleHANDI Team Reminder – Apply for 2023 Scholarships Now!
Spring is fast approaching, which means it’s time to talk scholarships!
View ArticleNHF announces publication of working group recommendations as part of the...
March 15, 2023 – The National Hemophilia Foundation (NHF) today announced that a series of manuscripts central to advancing patient-focused research for the inherited bleeding disorders (IBD) community...
View ArticleGuilt in Mothers of Children with Hemophilia Focus of New Study
Researchers from the Children’s Healthcare of Atlanta and Emory University recently published the results of a small study investigating the subject of guilt in mothers of children with hemophilia (CWH).
View ArticleAminocaproic Acid Manufacturer Shuttered Though Not Expected to Trigger Shortage
Akorn Pharmaceuticals, one of several companies that manufactures and markets the product aminocaproic acid, recently filed for chapter 7 bankruptcy and subsequently closed.
View ArticleAnswering Your Questions on the recent FDA blood donation policy revisions
Answering Your Questions on the Proposed Change to the FDA's Blood Donation Policy
View ArticleStart the Conversation with The Fellow on Call
This Bleeding Disorders Awareness Month, hematologists Ronak Mistry, DO and Dan Hausrath, MD start a conversation around their experiences being early career physicians, and launching a podcast. Watch...
View ArticleEmployee Highlight - Meet Chloe Fellwock!
The foundation's staff is comprised of dedicated people use their talents to help the blood and bleeding disorders community.A new member of the team is Chloe Fellwock, a communications assistant who...
View ArticleA Conversation on Health Equity with Hawaii Chapter Interim Executive...
April is National Minority Health Month. To learn about the experiences of the bleeding disorders community in an island state, Chloe, a member of the communications team, sat down with Kyra Calbero,...
View ArticleStart the Conversation: From Patient to Physician
To end Bleeding Disorders Awareness Month and celebrate National Doctors Day, Dr. Aaron Chen shares his story of how living with thalassemia inspired his calling as a physician. Watch his interview or...
View ArticleGovernment Relations Update - March 2023
Federal Updates:Washington Days Recap: Nearly 400 volunteer advocates attended Washington Days March 8-10th and participated in 235 meetings with Members of Congress and staff. The focus of this year...
View ArticleSanofi Announces Publication of Two Phase 3 Fitusiran Trials
Sanofi recently announced that results of two clinical studies of their investigational therapy fitusiran were recently published in The Lancet and The Lancet Haematology journals. Both phase 3 trials...
View ArticleCoalition Advocates for Substance Use Disorder/Behavioral Health Services for...
Coalition Advocates for Substance Use Disorder/Behavioral Health Services for Patients With Bleeding Disorders
View ArticlePathway to Cures Appoints Investment Committee
For Immediate Release Renee Peck Pathway to Curesrpeck@pathwaytocures.org 212-328-3790 New York, NY, February 27, 2023– Pathway to Cures (P2C), a venture philanthropy fund focused on transformative...
View ArticleCommunity Member Spotlight - Eldon Ham
As NHF continues to celebrate it's 75th Anniversary, the organization sat down with community member Eldon Ham to learn more about his story.
View ArticleStart the Conversation: How to Engage Unengaged Communities
Having everyone's perspectives is critical to forming solid research or a well-rounded program. But how do you get the perspectives of people who are not already be involved, whether by choice or...
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