Join NHF in Recognizing Nurses During National Nurses Week
We applaud all of our hard-working nurses during National Nurses Week, which begins Friday, May 6th.Read more about Join NHF in Recognizing Nurses During National Nurses Week
View ArticleStudent with a Bleeding Disorder Chapter Updated in Nurses’ Guide
The National Hemophilia Foundation’s (NHF) Nursing Working Group has been revising and expanding the Nurses’ Guide to Bleeding Disorders (NGBD). First published in 1995, the guide provides...
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Sangamo Reports Early Progress in Pre-Clinical Hemophilia A Gene Therapy Studies
Gene therapy trials in lab animals show significant increases in production of factor VIII and IX.Read more about Sangamo Reports Early Progress in Pre-Clinical Hemophilia A Gene Therapy Studies
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Hematology Fellows, Register Now for New Inhibitor Workshop
September educational workshop in Columbus, OH, will focus on the clinical care of patients with hemophilia and inhibitors.Read more about Hematology Fellows, Register Now for New Inhibitor Workshop
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NHF Mourns the Loss of John Indence, VP Marketing and Communications
John was not only our friend, but also the heart and soul of our voice to this community. Read more about NHF Mourns the Loss of John Indence, VP Marketing and Communications
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Apply Today for the 2016 Kevin Child Scholarship!
Applications for this $1,000 grant award are due Thursday, June 30. Get yours in today!Read more about Apply Today for the 2016 Kevin Child Scholarship!
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Submit your Late-Breaking Abstract for the 2016 WFH World Congress Today
Abstracts are due by Monday, June 6, 2016.Read more about Submit your Late-Breaking Abstract for the 2016 WFH World Congress Today
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SIPPET Study Results Published in NEJM
Researchers found that previously-untreated patients (PUPs) had a significantly higher incidence of inhibitors when treated with recombinant factor VIII than those treated with plasma-derived factor...
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ACE910 Shows Positive Efficacy and Safety Data in Phase I Trial
Chugai's novel prophylactic therapy for people with hemophilia A is administered through a subcutaneous injection.Read more about ACE910 Shows Positive Efficacy and Safety Data in Phase I Trial
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Shire/Baxalta Complete $32 Billion Merger
Combined company is expected to be the global leader in the treatment of many rare diseases.Read more about Shire/Baxalta Complete $32 Billion Merger
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New MASAC Document Addresses Clotting Factor Concentrate Supply in the Home
MASAC Document #242 is a valuable resource for understanding supply of clotting factor concentrate doses for home use by individuals with bleeding disorders.Read more about New MASAC Document Addresses...
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NHF Receives 4-Star Rating from Charity Navigator
NHF is honored to receive the highest designation, which is only given to 5% of nonprofit organizations.Read more about NHF Receives 4-Star Rating from Charity Navigator
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FDA Approves CSL’s AFSTYLA® for Hemophilia A
New drug is the first recombinant single-chain therapy. Its long-lasting action may allow some patients to infuse twice weekly. Read more about FDA Approves CSL’s AFSTYLA® for Hemophilia A
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UniQure’s Gene Therapy Performing well in Hemophilia B Trial
Preliminary data from a low-dose group were presented at the 21st Congress of the European Hematology Association in Copenhagen, Denmark.Read more about UniQure’s Gene Therapy Performing well in...
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Spark Announces New Data on Its FIX Gene Therapy
Encouraging results from a phase I/II clinical trial of SPK-9001, the company’s novel investigational hemophilia B gene therapy.Read more about Spark Announces New Data on Its FIX Gene Therapy
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NHF Statement Regarding PLOS Medicine Article
A statement from NHF CEO Val D. Bias on a recent article published in PLOS Medicine.Read more about NHF Statement Regarding PLOS Medicine Article
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NHF-McMaster University Clinical Practice Guideline – Care Models for...
Haemophilia Journal publishes the NHF-McMaster University Guideline on Care Models for Hemophilia Management.Read more about NHF-McMaster University Clinical Practice Guideline – Care Models for...
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HTRS Extends Pre-Proposal Deadline for Research Awards
Get your forms in by Friday, July 22.Read more about HTRS Extends Pre-Proposal Deadline for Research Awards
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New Educational Webinars for Healthcare Providers Outside Hematology
Primary care physicians, obstetrician/gynecologists, nurse/nurse practitioners, dentists, oral surgeons and other allied professionals are encouraged to take advantage of these excellent, accredited...
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NHF Awards Three Judith Graham Pool Postdoctoral Research Fellowships
For the past 45 years, NHF’s JGP postdoctoral research fellowships have been supporting innovative projects in clinical and basic science research leading to a better understanding of the biochemical...
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