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New Medscape Activity Reviews Current and Emerging Treatments for Hemophilia A
The activity reviews current treatment options for hemophilia A, challenges to optimal treatment, and future research directions.Read more about New Medscape Activity Reviews Current and Emerging...
View ArticleCurrent and Emerging Therapies the Focus of New Medscape Activity
Medscape recently launched a new education opportunity for healthcare providers. “Hemophilia 2018: Current and Emerging Therapies” is a discussion focused on the latest advances in the management of...
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Catalyst Begins Phase 2/3 Trial of Investigational Subcutaneous Therapy
Trial investigators will evaluate MarzAA’s ability to curb spontaneous bleeding episodes in patients.Read more about Catalyst Begins Phase 2/3 Trial of Investigational Subcutaneous Therapy
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70 Years of The National Hemophilia Foundation
But it is not our story -- it's yours.Read more about 70 Years of The National Hemophilia Foundation
View ArticlePAN Foundation Announces New Patient Assistance Program for Individuals with...
The Patient Access Network (PAN) Foundation has opened a new patient insurance premium assistance program for individuals with hemophilia. PAN is an independent, national 501 (c)(3) organization...
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Update on Shire Injunction Filing on Roche/Genentech
In the past few weeks, we have received many inquiries regarding the scope of the injunction Shire is seeking in its lawsuit against Genentech/Roche.Read more about Update on Shire Injunction Filing on...
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Newly Accredited Provider Webinar for Enhancing Outcomes for Women with...
This webinar aims to improve the overall knowledge of physicians in evaluating and screening women and girls with heavy menstrual bleeding for a bleeding disorder. Read more about Newly Accredited...
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HANDI Highlights Emergency Preparedness Resources to the Community
Plan for the unexpected with these emergency preparendness resources.Read more about HANDI Highlights Emergency Preparedness Resources to the Community
View ArticleRare Disease Day Coming to National Institutes of Health in March
On March 1, 2018, the National Institutes of Health (NIH) will recognize Rare Disease Day®, which is dedicated to raising awareness about rare disorders, the communities affected by them and current...
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My Life, Our Future to Be Featured in CDC Public Health Webinar
This webinar is free and open to public health professionals, clinicians, and researchers who want more information about hemophilia.Read more about My Life, Our Future to Be Featured in CDC Public...
View ArticleREBINYN® Now Available for Hemophilia B Patients
Novo Nordisk recently announced the availability of REBINYN®, the company’s recombinant GlycoPEGylated product for the treatment of adults and children with hemophilia B (factor IX deficiency). The...
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NHF 70th: A Revolution in Therapy Has Begun
Steven Pipe, MD, NHF's Chair of MASAC, looks at the future of bleeding disorders treatment.Read more about NHF 70th: A Revolution in Therapy Has Begun
View ArticleRetrospective Study Reflects Successful Transition to Extended Half-Life...
Investigators at the Children’s Hospital of Los Angeles (CHLA) recently published a retrospective review of patient clinical data, the findings of which reflect a series of largely successful...
View ArticleNHLBI Factor VIII Inhibitor Workshop Registration Now Open
Registration is now open for the National Heart, Lung, and Blood Institute (NHLBI) State of the Science Workshop, Factor VIII Inhibitors: Generating a National Blueprint for Future Research. The goal...
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NHF Mourns the Loss of Barry Haarde
Barry Haarde was a cyclist and community activist whose strength will never be forgotten.Read more about NHF Mourns the Loss of Barry Haarde
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Ron Bark, 1962-2018
NHF adds their condolences to all those whose lives Ron Bark touched.Read more about Ron Bark, 1962-2018
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Take the National HTC Patient Satisfaction Survey Today!
If you or someone you care for had contact with an HTC in 2017, your feedback is needed!Read more about Take the National HTC Patient Satisfaction Survey Today!
View ArticleNovo Nordisk Announces BLA Submission for Extended Half-Life FVIII Therapy
Novo Nordisk recently announced that they have submitted a Biologics License Applications (BLA) to the U.S. Food and Drug Administration for N8-GP (tuco-tuco alfa pegol), a recombinant, extended...
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HTC Investigators Look at UDC Data on Females with Bleeding Disorders
The study focused on disparities associated with bleeding symptoms, age at diagnosis and provider interventions for females with bleeding disorders.Read more about HTC Investigators Look at UDC Data on...
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Big Finish for Team NHF!
Runners in the NYC Half Marathon are an inspiration to the bleeding disorders community.Read more about Big Finish for Team NHF!
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