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Genentech Presents New Hemlibra® Safety Data During Virtual ISTH Congress
The safety data presented at ISTH was based on an analysis of 193 study participants with hemophilia A and factor VIII inhibitors.Read more about Genentech Presents New Hemlibra® Safety Data During...
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COVID-19 and VWF
NHF President and CEO Leonard Valentino, MD, discusses the role of von Willebrand factor (VWF) in severe cases of COVID-19.Read more about COVID-19 and VWF
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Learn About Public Health and Blood Disorders at NHF's BDC
Two dynamic sessions will addres public health issues facing the wider blood disorders community.Read more about Learn About Public Health and Blood Disorders at NHF's BDC
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Medical Advisory #426: CSL Behring and Ferring Pharmaceuticals have announced...
CSL Behring and Ferring Pharmaceuticals have announced a recall of lots of Stimate®. Read more about Medical Advisory #426: CSL Behring and Ferring Pharmaceuticals have announced a recall of lots of...
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Stimate Recall: NHF and HFA Seek Answers
NHF and HFA have sent a joint letter requesting details on the circumstances surrounding the recall.Read more about Stimate Recall: NHF and HFA Seek Answers
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Investigators Review Birth Outcomes in Women with Bleeding Disorders
A team of researchers from the Royal College of Surgeons in Dublin sought to better understand the effect of congenital bleeding disorder-related restrictions on maternal and neonatal outcomes,...
View ArticleLive Medical Preconference Symposium at NHF’s BDC to Tackle Rare Bleeding &...
Our distinguished faculty for this year's syposium will be reviewing the treatments currently available to manage bleeding in these patients and share significant advances being made to improve genetic...
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NHF Highlights Certified Provider Education Sessions at Upcoming BDC
NHF’s 72nd Virtual Bleeding Disorders Conference: Provider Education for Physicians, Pharmacists, Nurses, Nurse Practitioners, and Social Workers is jointly provided by Postgraduate Institute for...
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A New Path Forward in Research
Leonard Valentino, MD lays groundwork for national research agenda in bleeding disorders.Read more about A New Path Forward in Research
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Alex Borstein Brings Star Power to Raise Awareness of VWD
NHF and Takeda enlisted the Emmy-award winning actress to feature in a series of PSAs and resources.Read more about Alex Borstein Brings Star Power to Raise Awareness of VWD
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NHF Opens Nominations for Board of Directors
Board chair Scott Miller calls for more diversity on the board.Read more about NHF Opens Nominations for Board of Directors
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NHF Increases Financial Support of Chapters
NHF’s new grant program will help chapters during the COVID-19 pandemic.Read more about NHF Increases Financial Support of Chapters
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CDC Seeks Perspectives on Living with Chronic Pain
The CDC is looking for 100 participants to discuss using or prescribing different options for pain management.Read more about CDC Seeks Perspectives on Living with Chronic Pain
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Stimate Recall Update
CSL Behring and Ferring Pharmaceuticals, Inc have responded to the joint NHF-NHF letter of July 22, 2020, regarding a recent recall of Stimate (desmopressin) nasal spray.Read more about Stimate Recall...
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New Online Space for Black/African Americans with Bleeding Disorders
The private, online community is for Black and African Americans with bleeding disorders, their family members, and support network.Read more about New Online Space for Black/African Americans with...
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MASAC Encourages People with Bleeding Disorders to be Included in COVID-19...
NHF's Medical and Scientific Advisory Council (MASAC) discussed the role of people with bleeding disorders in SARS-CoV-2 Treatment and Vaccine Trials at NHF's virtual Bleeding Disorders Conference.Read...
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Medical Advisory #427: Stimate Recall Update
Ferring has extended the recall of Stimate to the consumer level.Read more about Medical Advisory #427: Stimate Recall Update
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Stimate Recall Expanded to Consumer Level
The recall has been expanded from the pharmacy level to the patient, or consumer level.Read more about Stimate Recall Expanded to Consumer Level
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Novo Nordisk Announces Near Resumption of Concizumab Trials
Concizumab is an investigational therapy designed to be equally effective in individuals with hemophilia A and B, irrespective of inhibitor statusRead more about Novo Nordisk Announces Near Resumption...
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FDA Recommends Additional Data for BioMarin’s Investigational Gene Therapy
BioMarin plans to meet with the FDA in the coming weeks to align on the next steps to obtain approval.Read more about FDA Recommends Additional Data for BioMarin’s Investigational Gene Therapy
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