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Join NHF to Talk About Your Future
What comes to mind when you think about the future?Read more about Join NHF to Talk About Your Future
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NHF Receives Five-Year CDC Grant for Education Programs
The cooperative agreement supports education and awareness programs for bleeding disorders patients, family members, and providers.Read more about NHF Receives Five-Year CDC Grant for Education Programs
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Medical Advisory #428: Mylan recalls Amiodarone, Tranexemaic Acid Injection
Advisory #428 notes these medications are administered in a hospital setting only by trained healthcare professionals.Read more about Medical Advisory #428: Mylan recalls Amiodarone, Tranexemaic Acid...
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Mylan Initiates Voluntary Nationwide Recall of Four Lots of Tranexamic Acid...
Tranexamic acid injection is indicated in patients with hemophilia for short term use to reduce or prevent hemorrhage and reduce the need for replacement therapy during and following tooth...
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BioMarin’s New Clinical Study to Focus on Antibody Development to AAVs
Study investigators will be looking at how trial participants may develop antibodies against the AAVs that are a key component to Biomarin's gene therapy.Read more about BioMarin’s New Clinical Study...
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New MASAC Recommendations Focus on Offsite Hemostasis Screening and Treatment
A new MASAC document tackles the challenges associated with using off-site laboratories to conduct hemostasis testing for bleeding disorders such as hemophilia and von Willebrand disease.Read more...
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NHF, HFA and Hemophilia Alliance Continue Push for Information on Stimate Recall
The Hemophilia Alliance joined with NHF and HFA requesting additional information from Ferring Pharmaceuticals and CSL Behring around the recent Stimate recall.Read more about NHF, HFA and Hemophilia...
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Genentech Provides Updates on Hemlibra Product Particles
Hemlibra® is a subcutaneous injection currently indicated for routine prophylaxis to prevent or reduce the frequency of bleeding episodes in adult and pediatric patients ages newborn and older with...
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NHF's Board of Directors Meeting
The National Hemophilia Foundation will be holding our quarterly Board of Directors meeting on Saturday, October 10th at 9:00 AM EDT.Read more about NHF's Board of Directors Meeting
View ArticleHemophilia B Therapy to be Discontinued
Mononine ® was first introduced as treatment available to hemophilia B patients in 1992.Read more about Hemophilia B Therapy to be Discontinued
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NHF is Charting a Course for the Future
Your input will ensure that NHF is meeting your needs.Read more about NHF is Charting a Course for the Future
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Sanofi Publishes Updates to BIVV001 Trial
BIVV001 is a novel, investigational recombinant factor VIII therapy developed for the prevention of bleeding episodes in hemophilia A patients via once weekly prophylactic infusions.Read more about...
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Unanswered Questions Remain in Gene Therapy
This commentary was authored by six individuals with severe hemophilia, all of whom have worked to achieve better health outcomes for patients with bleeding disorders.Read more about Unanswered...
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Visit Research Poster Abstracts from 72nd BDC
The abstracts featured at this summer's BDC covered a wide spectrum of research topics.Read more about Visit Research Poster Abstracts from 72nd BDC
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What's Next for the ACA?
How will the Trump administration's lawsuit against the ACA affect the bleeding disorders community?Read more about What's Next for the ACA?
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CSL Behring States Stimate Will Not Be Resupplied until 2022
CSL Behring provided a statement to NHF nand HFA regarding the recall of Stimate® (desmopressin) nasal spray.Read more about CSL Behring States Stimate Will Not Be Resupplied until 2022
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Last Chance to Access Accredited Education on Females with Bleeding Disorders
Primary care physicians, obstetrician/gynecologists, nurse/nurse practitioners, dentists, oral surgeons and other allied professionals are all encouraged to take advantage of these online...
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HHS Announces New Coronavirus Funding for Healthcare Providers
The funding considers financial losses caused by the pandemic.Read more about HHS Announces New Coronavirus Funding for Healthcare Providers
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Gene Therapy: What's New & What's Next Webinar
Watch this moderated webinar regarding the current status of gene therapies in the pipeline and other novel therapies.Read more about Gene Therapy: What's New & What's Next Webinar
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NHF’s Red Tie Soiree is a Virtual Success
On September 25, more than 300 people from across the country tuned in to this year’s virtual Red Tie Soiree.Read more about NHF’s Red Tie Soiree is a Virtual Success
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