NBDF Opens 2025 Research Grant Applications
For Immediate Release PRESS CONTACT: Kyla Clark National Bleeding Disorders Foundation 347-920-0047kclark@bleeding.org
View ArticleNational Bleeding Disorders Foundation Announces Washington Days 2025
FOR IMMEDIATE RELEASE
View ArticleCelebrating Bleeding Disorders Awareness Month with NBDF
For Immediate Release PRESS CONTACT: Kyla Clark National Bleeding Disorders Foundation 347-920-0047kclark@bleeding.org
View ArticleFirst Patient Dosed with Investigational Sub-Q Therapy for von Willebrand...
Hemab Therapeutics recently announced that the first patient has been dosed in their phase 1/2 clinical trial of HMB-002, an investigational subcutaneous therapy for patients with von Willebrand...
View ArticleNew Jersey Chapter Fights for Critical State Legislation
Stephanie Lapidow, Executive Director of the Hemophilia Association of New Jersey (HANJ), is leading the charge to protect patients from predatory insurance practices through critical state legislation...
View ArticleBreaking News: Takeda Announces Discontinuation of Two Hemophilia Treatments
Takeda Pharmaceuticals announced today it will globally discontinue two of its hemophilia treatments: HEMOFIL® M [Antihemophilic Factor (Human), Method M, Monoclonal Purified] and RECOMBINATE®...
View ArticleHappy National Social Work Month from the NFRC
Welcome to the Resource Round Up (formerly HANDI Highlights), a periodic communication of the Neil Frick Resource Center (NFRC), designed to connect the bleeding disorders community with practical and...
View Article2025 Scholarships List is Up!
The Neil Frick Resources Center (NFRC) is excited to announce new 2025 scholarship opportunities available to the bleeding disorders community.
View ArticleNBDF Expands Health Access Initiatives Through Strategic Department Evolution
For Immediate Release PRESS CONTACT: Kyla Clark National Bleeding Disorders Foundation
View ArticlePaper Finds Bone Health Screening Rates at HTCs Represent Clinical Care Gap
The topic of bone health in people with bleeding disorders has received more attention and study in recent years, with reports suggesting that people with hemophilia (PwH) and people with von...
View ArticleGovernment Relations Update - March 2025
Federal: Washington Days On March 6, over 400 advocates from the bleeding disorders community were in Washington, DC to meet with their legislators and their staff about issues important to the...
View ArticleFDA Approves Qfitlia: New Hemophilia Therapy Breakthrough
The U.S. Food and Drug Administration (FDA) recently approved Qfitlia™ (fitusiran) for routine prophylaxis to prevent or reduce the frequency of bleeding episodes in adult and pediatric patients 12...
View ArticleTake Action: Protect Bleeding Disorder Programs
We need your help again! Earlier this week, the Administration announced drastic changes and reductions to the federal health programs that support the bleeding disorders community. We talked about the...
View ArticleNFRC Features von Willebrand Disease Resources
Welcome to the April edition of the Resource Roundup (formerly HANDI Highlights), a periodic communication of the Neil Frick Resource Center (NFRC), designed to connect the bleeding disorders community...
View ArticleASH Led Initiative Focuses on Greater Representation in Hematology Clinical...
It has been well understood by many in the bleeding disorders community that clinical trials are, historically, very limited and not fully representative of the actual disease populations. In an...
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